Urology Clinic
So two appointments this week for Urology.
Monday was at St Helier - post operative follow up. Waste of time as they knew we were under the Marsden now. So we ended up going along, waiting for ages for him to have a look and say yes it's OK - and had to drag results of the biopsies from him. Still without much information.
Which I have to say, has been the major factor in all of this - the lack of knowing what the plan is, what the options are - as EVERYONE IS DIFFERENT. Everyone will have their own version and their own treatment - so until you know what is right for you, it's very hard to understand what he hell is going on.
On Friday - we went the The Royal Marsden Urology clinic. A place where you feel welcome, a place where you are not just a number. I speak regarding the Marsden as a whole - you are treated as an individual.
So today, we met one of the doctors and there were two choices presented. Surgery to remove the Lymph node - or BEP5 chemotherapy (which is 5 days of chemo x3).
Lot's of discussions around the pro's / cons for each - and because if the infection, it was suggested that we visit the surgery team at the Marsden in Chelsea to discuss what's involved.
This was going to be on Tuesday next week - moving forwards - but still not clear on what the path was....
Today was also a good day. I was introduced to a mate of a mate via WhatsApp, in a group so elegantly entitled "The Big BC (Ball Cancer)" Thanks Nige !!
Jason has been through exactly the same operation as me and although he didn't have the infection, had the same BEP chemotherapy - albeit just the one round of it. Same Professor, same team, same hospital. He's been here and done it. A very valuable Resource !
This group chat has been brilliant. It's helped me understand things, ask stupid questions and just have someone there offering support for the huge unknown. Jason has even offered to come and visit me to keep me company.
Thanks Nige for the idea and setting it up, love you mate.
Jason - we shall go for beers once I am through all of this.
Monday was at St Helier - post operative follow up. Waste of time as they knew we were under the Marsden now. So we ended up going along, waiting for ages for him to have a look and say yes it's OK - and had to drag results of the biopsies from him. Still without much information.
Which I have to say, has been the major factor in all of this - the lack of knowing what the plan is, what the options are - as EVERYONE IS DIFFERENT. Everyone will have their own version and their own treatment - so until you know what is right for you, it's very hard to understand what he hell is going on.
On Friday - we went the The Royal Marsden Urology clinic. A place where you feel welcome, a place where you are not just a number. I speak regarding the Marsden as a whole - you are treated as an individual.
So today, we met one of the doctors and there were two choices presented. Surgery to remove the Lymph node - or BEP5 chemotherapy (which is 5 days of chemo x3).
Lot's of discussions around the pro's / cons for each - and because if the infection, it was suggested that we visit the surgery team at the Marsden in Chelsea to discuss what's involved.
This was going to be on Tuesday next week - moving forwards - but still not clear on what the path was....
Today was also a good day. I was introduced to a mate of a mate via WhatsApp, in a group so elegantly entitled "The Big BC (Ball Cancer)" Thanks Nige !!
Jason has been through exactly the same operation as me and although he didn't have the infection, had the same BEP chemotherapy - albeit just the one round of it. Same Professor, same team, same hospital. He's been here and done it. A very valuable Resource !
This group chat has been brilliant. It's helped me understand things, ask stupid questions and just have someone there offering support for the huge unknown. Jason has even offered to come and visit me to keep me company.
Thanks Nige for the idea and setting it up, love you mate.
Jason - we shall go for beers once I am through all of this.
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